Preparing questions in advance can help patients to have more meaningful discussions with their physicians regarding their conditions. Patients may wish to ask their doctor the following HLHS-related questions:

1. What centers have the most experience with this condition?
   
   
2. Can you give us the contact information for parental support groups for children with this condition?
   
   
3. Is our case suitable for catheter-based interventions before birth?
   
   
4. Will we need any special equipment at home to care for our infant in between surgeries?
   
   
5. When can we expect our child will achieve developmental milestones such as talking and walking? How will the child's development be affected in the first years of life?
   
   
6. What is the survival rate for children with this condition?
   
   
7. What is the recurrence risk of this condition and how may this impact on family planning?
   
   
8. If we choose to continue with the pregnancy when would we plan on admission to the hospital and would this effect the type of delivery, vaginal or caesarean section?  Also, when and where will the baby be delivered?
   
   
9. What kind of financial burden will this condition place on our family? What resources are available to deal with them?